|
WE'RE FIGHTING
STILLBIRTH
THE DESTROYER OF DREAMS.
|
Welcome to the official web site of The National Stillbirth Society, an activist
organization comprised of parents and other family members and friends who,
having lost one or more babies to this vilest of all "birth defects", are
fighting back.
Last year over 28,000 babies in the United States were delivered dead. For the
most part they were of viable gestational age. About two-thirds evidenced no
observable physical cause to explain why they died. And yet, babies, like
adults, die for a reason. Medical science just has to search harder to find that
reason so many otherwise healthy babies are dying before birth.
At the Pregnancy Institute in New Roads, Louisiana, Dr. Jason Collins, an OB and
medical advisor to our group, believes he is on the track of what may prove to
be the leading cause of stillbirths. Working with empirical data he has drawn a
construct wherein he postulates that late term babies are often the victims of
simple cord compression during maternal sleep. If he is right this could be a
major breakthrough, much like SIDS "Back to Sleep" discovery which was also
based on a positional causality.
We
assume you have come to this site either because you suffered a loss, or have a
family member or friend who suffered a loss and are trying to understand this
thing called "stillbirth". Speaking as one who became a stillbirth father at age
60, I can tell you I had no idea it could and was still happening. That's
because no one - the medical community especially - is comfortable talking about
it so it sits there like the elephant in the middle of the living room floor.
Not even the instructor in our birthing classes we attended faithfully warned us
it could happen. Why?
Until recently it was thought there was nothing one could do to prevent
stillbirths. That simply is not true. Through monitoring "Kick Counts" at home
and demanding more extensive use of ultrasound and non stress testing to screen
for high risk pregnancies, conditions conducive to stillbirth can be detected
and appropriate steps taken to prevent it. (See
www.protectyourpregnancy.com for details of a prevention protocol
recommended by The Pregnancy Institute.
There is no excuse to allow stillbirths to continue on as it has for all of
recorded history. Whether your loss was a year ago, a decade ago, or as recent
as last week, we need your help to win the battle. We parents are the ones with
a stake in the outcome. We are the ones who know the pain of losing. We are the
ones who can make a difference.
The National Stillbirth Society was formed by stillbirth father Richard K. Olsen
to "educate, agitate and legislate" for greater stillbirth awareness, research
funding, and the passage of legislation in every state to recognize our babies
births by requiring states issue a "Certificate of Birth Resulting in
Stillbirth". The medical profession would like to maintain the fiction that our
babies weren't babies but merely "fetuses". But that fantasy fades in the light
of reality when one considers that our stillborn babies, most of them viable,
could have survived had they been born just days earlier.
Stillbirth is an "Equal Opportunity Destroyer of Dreams". It cuts across age
lines, color lines, race lines, class lines, and all lines. Norman Rockwell type
mothers can have stillbirths and "crack mothers" can have live births. At
present there's no way to predict who will be next. Though stillbirth is as
random as lightening strikes in a thunderstorm it is
rarely caused by anything the mother did or didn't do during her pregnancy.
Substance abusers often have early miscarriages or deliver developmentally
impaired babies, but stillborn babies are also born to mothers who followed the
rules and had adequate pre-natal care. This tells us there is no simple answer.
The cause or causes of stillbirth lie somewhere else - other than the obvious -
and we need to find it quickly because 70 babies are being born dead every day!
Monitoring "Kick Counts" and improved screening can cut the numbers of deaths in
half.
There is no shame in having a stillborn baby, only
profound sorrow. There is no fault to be found, only
frustration in what a mother sees as her failure. Having said that, join us as
we share what we have learned so far. There is work to be done to change public
awareness and attitudes and we hope by the time you've finished viewing our site
you'll want to become a member and volunteer in your state to change the laws.
One last thing before you leave, please subscribe to
our e-mail notification service. It will only take a few moments but
it will enable us to inform you of recent developments both nationally and in
your state. Thank you for stopping by the only parent-led activist site on the
Internet that fights stillbirth...... because all our children matter.
View Our Mission
Statement
Founder & Executive Director
The National Stillbirth Society
|